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Association “Always with Children” had the opportunity attend the fifth regional conference “Caring for Rare,” which was held in mid-September, in Belgrade.

The conference addressed important challenges related to rare diseases, covering topics such as:

  • The impact of caring for children with rare diseases on the family,
  • The effects of rare diseases on siblings,
  • Questions like how patients influence the rare disease ecosystem,
  • The importance of databases for rare diseases,
  • Specific challenges of late-onset rare diseases,
  • Issues of aging in rare diseases,
  • Newborn screening for rare diseases.

We are very grateful to the National Organization for Rare Diseases of Serbia (NORBS) for the invitation to attend the conference and for the opportunity to learn about the latest medical advances and plans for future work. We all share a common goal—to help those facing serious and rare diseases.

Only together can we achieve this.